Navigating Special Needs
BY SARAH LYONS
If your child has been diagnosed with special needs, or if you suspect they may have special needs, you may feel alone and overwhelmed, and you may be wondering what to do next. The good news is your child can live a happy, successful life. Here are some tips to get you started on this new journey.
Seek support from a professional.
If your child is showing signs of possible special needs, first, talk to their pediatrician. They can help identify potential issues and refer you for additional testing, evaluation, and support. Meet with your child’s teachers and school staff; they spend a lot of time with your child and may have insights and observations you may not be aware of.
Talk with your child.
Many parents worry about talking to their child about their diagnosis; however, kids often find it a relief to understand why they learn differently or need resources and assistance to keep up with peers. Help your child understand their learning needs and assure they can thrive with the right support and resources. Talk to your child about what specific things are hard for them and what resources would be helpful. Involve your child in decisions made about their education or care. When creating an Individualized Education Plan (IEP), work with your child, their teacher and any therapists to make sure your child has the right tools to be successful at school. Ask your child what kinds of things they want to do and learn. Listen to their ideas and concerns, and work with them to create an IEP that meets their needs.
Remember, each child is unique. It is essential to create an IEP tailored specifically to your child’s needs. Consider different types of interventions that can help your child reach their goals. For example, physical therapy may help kids build strength and motor skills, while speech therapy can help them with language development.
LOCAL RESOURCES
- Child Find (ages 3-21): 800-297-2070
- Early Intervention (children under 3): 808-594-0066
- Special Parent Information Network (SPIN): 808-586-8126
- Easter Seals Kauai Children’s Center: 808-245-7141
- Autism Services Kauai: 808-246-4808
- Kauai District Special Education: 808-274-3505
- Exceptional Support Branch (ESB): 808-305-9750
Special education programs may also be a good resource to provide your child with the best experience possible and meet their unique needs. Keep an open mind and explore all options available.
Seek resources for yourself.
Connecting with other parents in similar situations can be invaluable to a parent of a child with special needs. There are many support groups (in-person and on social media), websites and books with helpful information and advice from parents who have been in your shoes.
Stay informed about any new developments or treatments available. Talking to other parents in similar situations can be beneficial as they may have information and resources that could help you and your child in your own journey. Reach out to other parents and accept help from family and friends. You don’t have to do this alone.
With the right guidance and support, your child can reach their full potential. Make sure your child feels accepted for who they are, not for what they can (or can’t) do. Provide encouragement and most importantly – love your child unconditionally.
Celebrate every milestone and have fun with your child.
Make time in your day-to-day life to have fun with your child. Take advantage of recreational activities from swimming to art class – that can help your child develop their skills in a fun environment.
Never forget that you and your child are on this journey together. With the ever-increasing resources available, it’s becoming easier for families to find the help they need. Research, speak to other parents, and explore the range of options available so you can find the best fit for your child.